The Batten Disease Support and Research Association
(BDSRA) is an international non-profit organization
created to provide information and support, along with furthering
the efforts of research to find a viable treatment and eventually
eliminate Batten Disease. It is the only support organization
in Canada, the United States, New Zealand and Australia specific
to Batten Disease.
Contributions and fundraising activities provide the funding
for BDSRA's family-centered support and research programs.
BDSRA is a 501(c)(3) non-profit organization with a medical
advisory group and area chapters.
Our Chapter Office:
Metro NY/NY Chapter of B.D.S.R.A.
167 Homer Ave
Deer Park, NY 11729
Phone (631) 586-4315
Email: Info@MetroNYNJbdsra.org
Meetings are held at the Institute for Basic Research, Located
in Staten Island, NY.
Call or email us for a schedule of our upcoming meetings and
events.
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